Neurodegenerative Care Means Cutting-Edge Treatments and Clinical Trials

Peter Wallach

January 5, 2024

Peter Wallach
February 9, 2024

No one should face a neurodegenerative disease without access to the most advanced care available. From faster diagnoses to democratizing access to cutting-edge treatments and clinical trials, Synapticure is designed to be a single, integrated service that enables access for both patients and caregivers facing ALS, Parkinson’s, Alzheimer’s, and other neurodegenerative diseases.

Bringing Research and Care Together

When Brian Wallach and Sandra Abrevaya were diagnosed with ALS, they sought not only the best care but also the most cutting-edge treatments like millions of others living with neurodegenerative disease. Their mission became our mission: to transform neurodegenerative diseases into manageable, chronic conditions. Every part of Synapticure’s care model is designed with this goal in mind. From early diagnosis to clinical trial support, we’re committed to advancing research that has the potential to deliver life-changing therapies.

Traditionally, patients see their clinical teams every six months in a multidisciplinary setting, if access is even feasible. While these visits are essential in assessing progression and offering interventions to maintain quality of life, they often leave individuals and loved ones on their own to navigate promising clinical trials and early-stage research. 

At Synapticure, we remove those barriers. We bring care and research together, creating a cycle that not only improves treatment but also accelerates the development of cures.

Improving Clinical Studies and Trials

Clinical trials offer hope to patients by giving them access to cutting-edge therapies that have the potential to be disease altering. Synapticure has integrated these trials directly into our care model. We do this through a number of coordinated steps:

  • Knowledge of the Whole Landscape: Our care team works hand-in-hand with patients, discussing their priorities, reviewing the latest research, and ensuring they have access to the right treatments. Whether it’s a trial for an experimental drug or a therapy designed to slow disease progression, we empower patients with the knowledge and support they need to make informed decisions.
  • Complete Clinical Testing: Trials require complete diagnostic and prognostic testing to enroll — often including genetic, molecular, and biomarker information. We ensure patients can access these tests and can guide patients toward trials that are more tailored to their personal needs.
  • Site Partnership: Synapticure has developed the ability to offer EAPs and directly integrate into clinical trials in all 50 States, enabling faster enrollment and ongoing monitoring. While this capability is nascent, we’re excited to expand this and help trials fill faster at partner sites.

Data That Drives Progress

The most promising treatments often emerge from the deepest wells of data, and Synapticure is building the most extensive data sets on neurodegenerative diseases. This data is core to our care model - it helps ensure best practices for patients and caregivers based on their unique disease and needs, and can help predict risks for patients. By collecting detailed genetic, molecular, and clinical information from those currently living with neurodegenerative conditions, we also are creating a data resource that researchers can use to accelerate breakthroughs.

This model is similar to the one used in oncology, where vast datasets on patients helped catapult the field forward and led to the development of targeted therapies. At Synapticure, we believe the same is possible for neurodegenerative diseases. By actively involving patients in trials and collecting comprehensive data, we’re creating the conditions for the next generation of treatments.

Care Tailored to You, Wherever You Are

What truly sets Synapticure apart is our ability to make advanced care and research accessible, regardless of where you live. Through our telehealth platform, patients can connect with neurologists and clinical experts from the comfort of their homes, whether in a major city or a rural area. Our care navigators and neurologists are with you every step of the way, helping you access the right trials, reviewing emerging therapies, and discussing the science in a way that’s easy to understand.

We’re not just about treating symptoms—we’re about driving change. By bringing cutting-edge research closer to patients and integrating clinical trials into everyday care, we’re helping transform how neurodegenerative diseases are treated.

Ready to get started?

Your first consultation with a care navigator is at no cost. Give us a call at 855-255-5917 for details.

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